How Technology Can Improve Philanthropy

Technology has improved the world in many ways by bringing us closer and making things more efficient. This is also the case for the nonprofit sector. Many of the obstacles that used to get in the way of helping causes are no longer there. One of the first ways it has been transformative is in the way people now think of the word philanthropy.

For many years, philanthropy was associated with gifts from wealthy patrons and/or large sums of money. Because technology has made giving so much easier, it is now possible to donate to a cause you are passionate about, even if you have very little money of your own. Websites like GoFundMe provide insight into details about a specific charity or person who needs help. Crowdfunding, in general, is able to harness the power of the masses in order to obtain thousands of small gifts that add up to substantial support. JustGiving is another great platform to search for a cause to support, ranging form 5K races to funding a specific community project.

In the past, philanthropists would gather at large galas to hold fundraisers or charity auctions. Unless they held blind auctions with bidder numbers, people knew who was donating or bidding. There was no anonymity. Because of the internet, it is now very easy to support as many causes as you like, free from disclosure. It also goes the other way. It is very easy to campaign for a cause you care about via social media. Many people use their birthdays as a way to increase awareness about a cause. 

If a person is shy, they don’t even need to leave their house to donate. There are mobile text organizations such as The Mobile Giving Foundation which engages with donors via a smartphone network. Some major relief efforts were obtained after natural disasters such as the earthquakes in Haiti and Japan, and the Ebola outbreak.

Unlike in the past, people who support causes want to see where their money is going and want to feel fulfilled by the results. Organizations have responded with a greater ability to inform donors exactly what the latest news is. Customer relationship management (CRM) software is a portal that lets donors receive updates and ask questions about how a cause or project is moving along. 

Making a Difference: Cerebral Palsy

Most people are unaware that Cerebral palsy (CP) is actually a term that describes a multitude of disorders, not just one. The word Cerebral refers to issues that deal with the brain, and the word Palsy refers to a person’s ability to maintain balance, posture, and movement.

The main cause of CP is predominantly due to the mother catching an infection or a virus while the fetus is still in utero. These account for 70% of the cases. Some people also attribute it to a lack of oxygen flow to the infant’s brain during labor and delivery, but that is actually a very small percentage.

A child who has CP will show signs early in childhood and they may display floppy limbs, involuntary movements, or exaggerated reflexes, to name just a few. There is no known cure at this time for CP, and most sufferers will require life-long treatment, including physical therapy, medication, and occasional surgery. For many families, these are expensive and emotionally draining times, which is why there are charities to support families who have members with cerebral palsy.

United Cerebral Palsy (UCP) is a non-profit organization that works to help families with cerebral palsy members as well as other disorders. Founded in 1949, they pioneered the idea of using fundraising telethons as a means of support. The Cerebral Palsy Foundation (CPF) is another group that not only supports people, but they do it in a different fashion by partnering with schools and the media. Reaching for the Stars is focused heavily on the science behind CP and working on ways to someday formulate a cure. 

There are also organizations that are determined to ensure adequate rights for those who suffer from disabilities. The American Association of Intellectual and Developmental Disabilities (AAIDD) was founded in 1876. Their main goals are to broaden the ability of businesses to work with individuals who have intellectual and developmental disabilities and to promote and encourage the development of a society that can fully embrace people with intellectual and developmental disabilities.

In addition to these support groups, there are numerous others that assist with the neonatal and maternal sector. March of Dimes was founded by President Franklin D. Roosevelt in 1938. The original aim was to combat polio and it was called the National Foundation for Infantile Paralysis. Since funding Jonas Salk’s life-saving polio vaccine, they have steered their focus towards preterm birth-related diseases, as well as other childhood illnesses.

Finding the Right Charity for You

There are many people who want to make a difference in the world, even if it’s in a small way. There are 1.6 million non-profit organizations in the United States at the moment, and they support causes ranging from wildlife and nature preservation to battling hunger and homelessness. For every cause you could possibly care about, there is a charity to match. The problem lies in choosing which ones are legitimate and which ones will benefit your chosen issue the most.

It is very easy in today’s world to set up a GoFundMe page or a website that purports to serve various causes. The problem with the internet is the anonymity and lack of accountability that thrives in such an unregulated environment. You might see a charity that calls itself humane league without having any actual connection to the actual animal rights advocacy group, the Humane League

There are many online databases that have done a lot of this research. They examine the financial health of the businesses and their commitment to both transparency and accountability. Some examples of these websites are guidestar.org, charitywatch.org, givewell.org, and charitynavigator.org. They do the heavy lifting when it comes to exploring tax filings and present their data in a straightforward, unbiased way.

Another great tool is word of mouth. Many people have spent years volunteering their time and donating money to various causes, rewarded by a great feeling of satisfaction that comes femur helping others. You can also look to your employer or university to see if they favor a particular cause. Chances are that they are not investing in any type of unseemly organization. 

A great way to support a charity is by volunteering. Administrative costs can add up, so searching a website like volunteermatch.org is a great way to see how your time can be of use. By typing in your location, you can see where you can be of service. The website also lets you narrow down availability based on your interests. If you have a particular skill that can be of use, there is another website called catchafire.org. This space provides a way to match your skills with organizations that would greatly appreciate the pro bono work of an expert.

Ways to Support Breast Cancer Awareness in October

Alan Rasof Breast Cancer AwarenessWays to Support Breast Cancer Awareness in October

Every year, the US and other nations commemorate those suffering from, recovering from, and living cured of breast cancer throughout the month of October. Individual people and companies will wear pink to show their support for those with the disease and to raise money for research and treatments for patients. From Yoplait to the National Football League, products and people sport pink for breast cancer awareness and fundraising. If you want to personally support the people suffering from the disease or the families of the patients, here are some ways you can get involved.

Donate directly to a local hospital: A number of exposes have criticized such organizations as Susan G. Komen for spending less than 10% of the money they raise on the patients, victims, and their families. The rest of the money gets tied up in overhead, pink products, and ad campaigns. If you want to ensure that your money goes directly to the people in need, their medications, and their families, talk with your local hospital or oncological clinic and send money to them rather than to a third-party fundraising organization. You can also browse sites like GoFundMe and donate to individuals who are raising money for treatments, travel, and reconstructive surgery.

Talk about detection: Where it’s appropriate and where you’re among trusted friends, have a conversation about self-checks and proper preventative maintenance. In the vast majority of cases, breast cancer is highly treatable when it’s caught early, but catching it early is the trick. People with breasts should be on the lookout the twelve signs of breast cancer, as outlined in this handy infographic from Know Your Lemons.12+signs+of+breast+cancer+using+lemons

Help your family live healthfully: For breast tissue in particular, there are some common practices and behaviors of Americans that directly cause breast cells to function improperly and wreak havoc on the human breast. For example, certain soaps and shampoos that include parabens, which are known to disrupt breast cell reproduction. Similarly, evolutionarily, humans didn’t produce their own hormones for a long time, so breasts are to this day very receptive to any chemical that even mimics estrogen. Unluckily for us, though, plastic is similar enough that breasts absorb plastic molecules, which are well known to cause cancer once allowed into the body. Avoid microwaving in plastic or interacting with much heated plastic, including Keurig cups.

Invisible Disabilities

Alan Rasof Invisible DisabilitiesEvery so often, an article circulates about some horrible citizen who parked in a handicap spot and exhibited no need to. Often accompanied by secret smartphone footage and quiet snide commentary, the outrage usually emerges because there is no visible evidence that someone is suffering from a disability. As it turns out, though, there are countless invisible disabilities that could render an otherwise simple trip to the grocery store excruciatingly difficult or painful.

Invisible disabilities include those that impair the individual from navigating life as comfortably as those with fully-functional bodies, but whose handicaps may not be as obvious. Take, for example, someone with severe hearing loss. Or someone with “burning syndrome,” a nervous disorder that renders the person extremely sensitive to any touch so much so that their skin feels on fire all the time. Those people still need a little extra help as they traverse the world, but a passerby would have no idea.

For a long time, invisible disabilities were treated as either totally hallucinated or as miracles from God. For long stretches of human history, women could be diagnosed with “hysteria,” when in fact they were dealing with something that today we would call depression, anxiety, or PTSD. Many who suffered from what we call epilepsy were thought to be prophets — the “dreams” they had were trademarks of the cognitive disorders associated with epileptic episodes, and some even think that Joan of Arc herself suffered from epilepsy.

One woman in Boston recently wrote about her difficulty riding the train to and from locations because of an autoimmune disease that eats away at her tendons, making mobility difficult and terribly painful. For some time, it was awkward for her to ask strangers to cough up their seats for someone who appears to be perfectly healthy, but then she began using a cane and slowly mustering the courage to verbally ask people if she could sit in their chair.

Today, though, we have a much better understanding of the physical and cognitive disabilities that may not be as obvious as missing legs or speech impediment. Our ability to accommodate such people, however, is still in the works.  
Towards the end of last year, England rolled out a program for their public transport in which some passengers wore small blue campaign pins that read, “Please Offer Me a Seat.” London offered these free buttons to 1000 riders with invisibilities so that they didn’t have to feel so awkward asking for a seat on the subways. After a few months, the city counted the experiment a total success, with more than three quarters of the button-donning passengers reporting that their riding experience had indeed improved.

Talking about disability to able-bodied children

A huge part of creating an inclusive, supporting environment for children with disabilities is making sure their peers are in the know about how disability works. You may initially feel uncomfortable talking with a young child about a classmate in a wheelchair or a classmate with learning differences, but creating a world more receptive to people with differences starts with young people. Rather than teaching a child to ignore a person with a disability, or worse yet, treat a person with a disability condescendingly, here are some ways you can talk about disability in a way that encourages interaction and acceptance.

Firstly, address the difference. Children are naturally curious and may stare, gawk, or point at peers who have obvious physical differences, so use the opportunity to educate on disability, not bury the topic. When children are taught to “ignore” disability, they neglect the importance of inclusion, so teach them to embrace differences, ask questions, and engage with people who are different.

Talk straight with your child. Use names for devices and briefly sum up their purpose. For example, if your child is curious about a person with an oxygen tank, explain plainly and without emotion or speculation that the person may need some extra help breathing, so they use the tank to help. Using appropriate and respectful words to describe disability will instill respect in your child. Instead of words like “crippled,” “retarded,” or “deformed,” you can use words like “different,” “disabled,” or cognitively/intellectually disabled,” to ensure acceptance rather than condescension.

Point out similarities. Rather than dwelling on how children with disabilities are different from able-bodied children, talk about the ways all children are similar. Children like to have friends, play games, form opinions, pet puppies, watch movies, and other common activities. Spending time on similarities will reinforce inclusion, acceptance, and empathy with your child.

Immediately discourage bullying or jokes. A child may naturally want to tease or prey on another child’s difference or disability, as children with disabilities are commonly considered “easy targets” for verbal abuse. Demonstrate to your child that it would be hurtful if someone teased them for something uncontrollable, such as their hair color or name, so it’s not nice to do the same to another child. Your main thesis when discussing disability with your child should be that, no matter a child’s condition, they’re still a person who deserves respect and acceptance.

Taking the time to teach and model respect towards people with disabilities will help develop the same attributes in children, reduce bullying, and create an inclusive culture that benefits both able-bodied people and those with disabilities.

Three People With Cerebral Palsy Who Are Changing The Game

Cerebral Palsy is a neurological disorder that currently is currently affecting 764,000 people in the world today. Each year, about 8,000 to 10,000 babies and infants get diagnosed with this disorder according to cerebralpalsy.org.

Cerebral Palsy occurs as a result of a brain injury or malformation that occurs during a child’s development. The result is typically physical impairment. While many people with cerebral palsy are physically impaired, the way this symptom shows up is different for each person. There is a difference in the type of movement dysfunction, the location and number of limbs involved, and the extent to which the person is impaired from person to person.

Cerebral palsy is permanent and incurable, therefore those with cerebral palsy live with it for their entire lives. While many able-bodied people would think of this as something that stops people with cerebral palsy from doing what everyone else can, this is far from true. There pioneers are showing the world that cerebral palsy doesn’t have to stop anyone from reaching success.

  1. Bonner Paddock, the world’s first ironman with cerebral palsy

Bonner Paddock completed the 2012 Ironman Triathlon in Kona, Hawaii, making him the first person with cerebral palsy to complete the race. He was also the first person with cerebral palsy to climb Mount Kilimanjaro. Paddock was very active as a child, playing competitive soccer and baseball. His CP was mild, though he would drag his feet and often lose his balance. He was not correctly diagnosed until the age of 11.

Paddock did not talk about his disability publicly until he was 30 years old. He went on to run a number of marathons in addition to the Ironman Triathlon. He also founded the One Man, One Mission Foundation, a nonprofit that raises money to build early-learning centers for children with disabilities.

2. Maysoon Zayid, comedian and inspirational speaker

Maysoon Zayid is a comedian, writer and actress who works hard to spread the word that cerebral palsy doesn’t have to hold you back. After experiencing obstacles in the acting world due to lack of representation of people of her race and with her disability, Maysoon became a comedian and is now making millions of people laugh. She has worked with many soap opera stars as well as Adam Sandler and Dave Matthews. Maysoon also founded Maysoon’s Kids, a charity that works to help Palestinian refugee children. She is also the co-founder of the New York Arab-American Comedy Festival.

3. Ollie Nugent, UK football player

Ollie Nugent is one of the most talented players within the world of Cerebral Palsy UK football. Nugent suffered a stroke when he was born, thus leading to cerebral palsy. Despite what his parents were told to expect, Nugent walked at only 10 months. He later began kicking a ball and the rest is history. He began playing at Tranmere Rovers at the age of eight.

Nugent’s cerebral palsy affects his eyesight (mainly peripheral) and his right side. He has adapted to this over the years. After years of determination, Ollie Nugent wants to become the first player with cerebral palsy to go professional. Nugent is working hard to show the world that cerebral palsy cannot stop him from reaching his goals.

Cerebral palsy may last a lifetime, but that doesn’t mean it has to hold people back. These icons are paving the world for people who live with cerebral palsy to show them that anything is possible.

Sports Illustrated Honors Teen Who Led Cerebral Palsy Walks

In my last blog post, I wrote about the inspiring and heart-warming story of Hunter Gandee, a teen hero who has brought tons of attention and awareness to Cerebral Palsy, a disease that affects his younger brother, Braden Grandee.

On Monday, Sports Illustrated announced its annual list of accolades. Earning the first High School Athlete of the Year award was the 15-year-old high school sophomore, Hunter Gandee.

“What an honor! I’m truly blessed!” Hunter tweeted Monday afternoon.

Hunter was 14 and Braden was 7 when the brothers first walked 40 miles together to raise money for a handicap-accessible playground at Braden’s elementary school, as well as increased understanding of cerebral palsy — a brain injury that affects movement, posture and muscle coordination.

Throughout the entire June 2014 walk, Hunter carried his brother on his back. One year later, the duo was back at it — this time walking 57 miles. The second “Cerebral Palsy Swagger” event was a step up challenge-wise, but the goal was the same.

“One thing I wanted to show through this walk is the power of the youth in our society,” Hunter says. “We saw a problem, we had an idea to create a solution, and the only difference from us and a lot of other kids is that we went out and tried it.”

Since completing the walks, the brothers have received attention from national media organizations, hoping to share their story. Hunter has received countless awards for his strength and determination, including most recently the Sports Illustrated accolade.

Hunter’s story will be featured in the Sports Illustrated magazine issue that hits the stands Dec. 21. He has also been invited to an awards dinner in New York to honor the athletes featured in the magazine, including cover athlete and tennis legend Serena Williams.

Here is a 10 minute video I found that shows the beautiful relationship between these two brothers. Enjoy:

 

Community Rallies Together To Build Accessible Playground For A Student With Cerebral Palsy

hunterandbraden

Douglas Road Elementary in Bedford township has a brand new playground, inspired by Braden Gandee, 9, who has Cerebral Palsy.

NBC News first introduced the Gandee brothers’ story in June 2014 when the pair set off — with Hunter carrying Braden on his back — from their home in Temperance, Michigan, and walked forty miles to the University of Michigan’s Ann Arbor campus to raise awareness about cerebral palsy. Along the journey, people cheered them on.

The story of Braden and his brother Hunter made national news with what they called the “CP Swagger.”

All that attention brought generous donations from individuals across the country, including from teams of engineers who offered to build a new playground for the community, accessible to people suffering from disabilities.

Inclusive+Playground1

Braden Gandee always had a simple dream: to play at recess alongside his classmates.

“I just had to sit back and watch them [friends] have fun,” said Braden “I really wanted to do what they did.”

With the help of dozens of volunteers, including his big brother, Braden and all his classmates can now play together.

“Before at recess, Braden was only able to do a few things: ride his power chair around the blacktop or use his walker,” Hunter Gandee, Braden’s brother said. “He had one handicap accessible swing.”

But now the possibilities seem endless.

“It’s just a good feeling,” Braden said. “Now I can go out and play with my friends.”

Kids with all different abilities can set sail on the new pirate themed, inclusive playground set.

“What’s really cool about it, is that Braden is going to be able to play with his friends,” Hunter told NBC. “It’s got special equipment he can use with his friends and he’s going to have so much fun.”

“3 weeks ago it was a dirt pile and an empty field,” Donnie Stevens, the president of the Parent Teacher Association at Douglas Road Elementary said.

The playground idea started some 18 months ago. The PTA spearheaded the fundraising after being inspired by the Gandee’s.

“The moment it became reality is when you see Hunter walking with Braden down that long hallway,” Stevens said.

He says the community really rallied around the effort, donating time and money to make it all possible.

“Piece by piece we got to where we’re at now,” he said.

The Gandee’s hope this will encourage other school districts and neighborhoods and most importantly educate people about Cerebral Palsy.

Watch this video to learn more about this inspiring story:

To read more about this story, click here

 

Abbey Curran: A Voice of Confidence

Abbey Curran, Alan RasofAbbey Curran was the first woman with a disability to compete and win in the Miss Iowa beauty pageant and later to compete in the Miss USA beauty pageant. After being diagnosed with cerebral palsy from birth, Abbey’s determination to exceed a wide range of expectations throughout her life is what has made her a powerful voice for young children with disabilities today.

As a child, Abbey was told that it wasn’t realistic for her to compete in a local beauty pageant because of her disability. As stated in an interview with CerebralPalsy.org, Abbey claims that her frustration turned into determination: “‘It made me mad when someone told me I couldn’t do something. I entered that pageant, and I was in the top 10,’” (Former Miss Iowa and Pageant Founder Helps Little Girls Recognize Their beauty). From that day on, if Abbey was ever told she couldn’t do something, it was her mission to prove them wrong.

When Abbey competed in the Miss Iowa pageant in 2008, she was told she would never win. But she did. She made history as the first woman ever with a disability to compete in the state competition, and the first to win. When Abbey then competed in the Miss USA pageant her confidence levels skyrocketed. Though she did not win, Abbey learned how much of a confidence boost participating in a pageant can be for young girls, especially young girls with disabilities who have been discouraged a multitude of times both at school and at home.

One day between pageants Abbey had a conversation with another girl who also had special needs. This girl toMiss You Can Do Itld Abbey that she wanted to compete in a pageant, but her parents told her she couldn’t because people would laugh at her. These words devastated Abbey, so in 2004 she created the first “Miss You Can Do It” pageant for young girls with disabilities, catered towards making girls with disabilities feel confident and beautiful just the way they are.

Wheelchairs, walkers, canes, and braces are familiar sights at the pageant, and help to create a sense of empowerment as well as support for contestants who have special needs. In her interview, Abbey exclaims:

miss-you-can-do-it-w352“‘They get oodles of confidence; they’re the prettiest little girls. Everyone here likes them. They learn when they come to this pageant that they’re not alone. People aged 5 to 105 love them. They get to go home with something huge…They meet other girls they would not meet otherwise,’” (Former Miss Iowa and Pageant Founder Helps Little Girls Recognize Their beauty).

It is a very powerful thing when young girls see other girls and women who have disabilities so that they know they’re not alone – that thousands of girls around the world have similar struggles to their own. Abbey’s main goal for the Miss You Can Do It pageant is for everyone “to view those with challenges as people who have as much to offer as others,” (Former Miss Iowa and Pageant Founder Helps Little Girls Recognize Their beauty).

Abbey’s confidence and determination is something for young girls – with or without disabilities – to emulate. She is a true leader dedicated to making the world a better place by creating equal opportunities for these girls with a kind, compassionate heart. For more information about the Miss You Can Do It pageant, please check out their website here.